Contact us
- Mónica Pfeiffer / Director
- monica.pfeiffer@casakhuyana.org
- Casa.Khuyana
- @casakhuyana
- Sector Pata Pata Calca - Cusco, Perú

Proposal for the Declaration of Rights of Terminally Ill Children
Dra. Lisbeth Quesada Tristán
I have the right…
- To be seen and conceived as an autonomous being, and not the property of my parents, doctors or society.
- To have my opinion considered when decisions are made, since I am the one who is sick.
- To cry.
- To not be alone.
- To invent fantasies.
- To play; because even while dying, I am still a child.
- To control my pain from my first day of life.
- To be told the truth about my condition. That my questions be answered honestly and truthfully.
- To have my needs comprehensively considered.
- To have a dignified death, surrounded by my loved ones and my most beloved objects.
- To die at home and not in a hospital, if I want to.
- To feel and express my fears.
- To receive help for me and my parents to work through my death.
- To feel anger, rage, and frustration about my illness.
- To refuse to continue receiving treatment when there is no cure for my disease, but a good quality of life.
- To hospice care if I want it.
- To be sedated when facing my death, if I wish.
- To be free from pain when diagnostic and treatment procedures are carried out for my illness.
- For my parents to understand that although I love them very much, I am going to be born to a new life.